Showing posts with label coping. Show all posts
Showing posts with label coping. Show all posts

Sunday, January 5, 2014

Tips for getting through the holiday season

Holiday season can be really demanding. Lots of events to attend that are noisy, bright and crowded. In Australia, the Christmas season is at the end of our school year, which is also a stressful time as school classes are out of routine, everyone is tired, and the weather is heating up. In the past for us this has meant an increase in stress and overload related meltdowns (and not just for the Autistic family members!) as we all struggle to keep up. 

Over the years we have learned some strategies in our family, purely by trial and error (my error, usually!) in most cases, that help us all during the holiday season. So this post is all about telling you the strategies we use to manage the challenges of holiday season events, in the hopes that some of the things we find work will be helpful for you too.



Strategy 1:  Say no to stuff

There is a lot on at this time of year. You do not have to do it all. If an event is something you know you or your child will not enjoy, it can't be adapted to help accommodate yours or your child's needs or if it presents safety concerns- say no and don't go. 


Strategy 2: Make your needs clear to those you will be spending time with

There is no need to apologise for this to your host or tread softly when telling them what you and your children need to be present and enjoy your time there. Everyone has a right to have their needs met, even if a little more effort is required for some than others. For us, one thing that really helps is to have all the essential activities of the visit over with early on in the event, so that if we need to go we can and we won't have missed out on things. In practical terms for our family this meant that when we went to my parents place for a Christmas celebration we asked to have the main meal served immediately when we arrived and the presents to be opened straight after that.  Those two things done early in the visit meant that we were free to go whenever we needed to. 


Strategy 3: Ask your host for a schedule of what will be happening so you can let your kids know what to expect

A lot of the anxiety my kids feel about going to events is not knowing to expect. If I can tell them what to expect and they know the venue a large part of their stress is removed. It also serves to help me know when I need to be most available to support them because I have advance warning of when things are likely to be loud or busy or otherwise challenging. 


Strategy 4: Set up a designated quiet place at the venue and show your child where it is so they can escape if they need to

This needn't be a big deal. A quiet corner in a bedroom is enough, as long as your child will be comfortable there and as long as others know that if your child is there it means they need some time alone and should not be disturbed. Make sure you show your child where it is and tell them they can go there if they need to be alone. Doing this has helped my daughter attend 3 recent events meltdown free, event though they were things she would usually find overwhelming. At one of those there was no room available for a quiet spot, but we took a very small pop up play tent and set it up for her in a quiet-ish corner of her choosing and it was enough- she could go in there and no one could see her and she couldn't see them. She used it a few times through out the evening and avoided becoming overwhelmed by deciding for herself when and for how long she spent time in there. 


Strategy 5: Bring your child's favourite soothing item and favourite food and let them have access to it

For us, this is often the iPad. Sometimes it is a fidget toy. Very occasionally it is a soft toy or a plastic dinosaur or horse. Whatever works. If your child has an item with them they find soothing and distracting it can help them recanter when they feel stressed. It can also be a good idea to bring some of your childs favourite foods. Trying new food can be stressful, so having something familiar to eat can reduce stress. When my daughter was younger I took her favourite crackers, dip and cheese everywhere with us so she would always have something to eat. We also found that chewing really crunchy foods and sipping through a straw helped relieve anxiety for her. 


Strategy 6:Leave "early" if you need to

My kids have some definite "tells" that they have had enough. I bet your kids do too. My experience is that if someone has had enough, they become less tolerant, more likely to become rude and difficult to be around. I know I do, and if you are honest, I think you'd say you do too. For an Autistic person "enough" can happen sooner than for a non-Autistic person, simply because of the work they are doing to process the sensory input and social interactions. And that is OK. If you've had enough in a social situation you remove yourself from it, right? So, do that for your kids too. If you can see they've had enough, leave. Take them home, let them relax. If it is impossible to leave immediately, make a plan to leave, tell your child what the plan is and stick to it. Let them stay in their designated quiet place until you can leave if that helps them. 
Edit: Alyssa left a comment (you can read it below) and made a really good point..... make sure the kids know they can tell you they need to leave. Scroll down to read her full comment. 


What do you think? Will any of these be helpful for you and your family? I'd love to hear from you if you try these strategies for the first time.... let me know how you go. You can also get in touch to tell me about strategies you already use that help your kids- someone else is bound to find them helpful too. 

Happy holidays! 

Sunday, September 16, 2012

The grief ambush

I was reading a conversation thread in a group I'm in on Facebook, where people were sharing what they'd done on the weekend. Most of the comments were about how they'd been with family celebrating birthdays, or that they'd had a surprise visitor, or spontaneously gone on an outing. And they all said they'd had a great time, or enjoyed themselves.

And I realised something I hadn't thought about before.

I haven't truly enjoyed a family get together, a surprise visitor or a spontaneous outing for ..... ages. I mean, I've been in those situations and there have been moments of pleasure, or laughter, or contentment. But I am always super alert through the whole event- watching for cues that I need to intervene to support someone or make a quick exit- which is tiring and detracts from the experience because I am not fully focussed on the conversations in the room or the people there. I always leave feeling drained and tired. And sometimes wondering if it is worth the effort.

And realising this made me sad.

A little bit of the sadness was for myself, because I miss enjoying social situations.

A lot of the sadness was for my two ASD kids, because I started to imagine what their experience of life is like if their reaction to social situations has this effect on me. How much worse must it be from their perspective? I hate to think! I know a little bit of the theory of what it is like for them from talking with psychologists and adults with ASD. I don't really want to know exactly what it is like for them, honestly. I think it would be too distressing to really know. Whatever their experience is, they get to live with it for the rest of their lives. I can help them learn strategies to help them cope, with the help of the right people, but I can never make it completely better for them- it will always be coping.

I'm not sure yet what to do with this new realisation. It is making me uncomfortable. Sad. A bit angry. Mostly sad.

......many reasons to be thankful
I can feel a bit of the familiar recurring grief cycle creeping up on me. Tugging at me to sit with it for a while again, and feel sorry for myself. And this time, because I feel it coming, instead of it jumping up and grabbing me, I feel reluctant to give in. I don't want to grieve right now. I resent that tugging. I dislike the way that grief lurks in the shadows of my mind and waits for something as simple as a conversation about enjoying life to ambush me and cause me to stop everything to deal with it.

Maybe naming it and telling you about it will help me to walk by it this time. Maybe acknowledging that it lurks there will help to push it into the background again, without me having to spend time fighting it.

See, I think that while it is probably true that I have real reason for this occasional grief, that I have so much more to be thankful for. And that is what I'd rather be thinking of.