Monday, March 23, 2015

Autism Acceptance 2015

If Autistic people were accepted we would not need Autism Awareness Month.

Yes. That is what I said. 

If Autistic people were accepted we would not need Autism Awareness Month.

We live in a  society that does not value diversity. 

We live in a society that disables people with its intolerance of difference.

We live in a society that honestly believes the best thing to do for an Autistic child is to make them look not Autistic so that they do not get teased or bullied.

Conform. Fit in. Submit. Perform. 

These are the messages my children receive day after day. One month of awareness talk is not going to change that. In fact, it reinforces it. 

"We are aware you are here and you are different, and we see you as a burden to be endured, problem to be dealt with and a puzzle to be solved."  

That is the message Autism Awareness Month sends to Autistic people. 

If our society valued diversity Autistic people would not be seen as a burden. 

If our society encouraged and celebrated difference Autistic people would not be treated like a problem. 

If our society would condemn bullying instead of encouraging the disabling of people in minority groups more people would be willing to speak against the rhetoric of puzzle pieces and mystery. 

If Autistic people were accepted we would not need Autism Awareness Month.


The tricky part of this conversation is that there are people who really do believe that awareness helps. They have very good intentions. They want to do what is right. I can understand why they feel defensive when they first hear someone say that awareness is neither helpful or enough. To be honest, I did a bit of a double take the first time I saw the idea too. My response was to read the dictionary! I love words.... and am always interested in defining and understanding (call it a special interest, if you will). Reading the definitions of awareness and acceptance showed me clearly why awareness is not helping Autistic people. 

awareness |əˈwɛːnəsnoun [ mass noun ] knowledge or perception of a situation or fact
acceptance |əkˈsɛpt(ə)nsnoun [ mass noun ] the action of consenting to receive or undertake something offeredthe process or fact of being received as adequate, valid, or suitable

Autistic people are here with us in our shared society. They are offering themselves unreservedly and in all their diversity and beauty. They are asking us to look at them and receive them as adequate, valid and suitable, and that we do that without condition or expectation that they will change to suit our whims. It is not a big thing they are asking. Just acceptance. Just exactly what you and I are privileged to receive already. 

And I say yes. I am not happy to merely have knowledge of this situation. I choose to accept what I am being offered. It is after all a gift when someone offers themselves to you. They are making themselves vulnerable and open to hurt. So far our society has dished out a lot of hurt to Autistic people.

I say yes. I choose acceptance. And I say to my Autistic children: You are adequate. You are valuable. You are suitable. You are wonderful just as you are. I love you.

I do say yes. I choose acceptance. And I say to my Autistic friends: You are adequate. You are valuable. You are suitable. You are wonderful just as you are. I am glad you are here. 

And I say again,  If Autistic people were accepted we would not need Autism Awareness Month.

Will you celebrate Autism Acceptance Month with me? 






image: a yellow rectangle with a black line border.
On the right of the rectangle is a photo of a fair skinned, blond haired and blue eyed child in front of a tree trunk.
On the left of the rectangle are the words-
If you would ACCEPT ME as I am there would be no need for all this "Autism Awareness"


Sunday, February 22, 2015

Measures of Success

This article has been moved to 
michellesuttonwrites.com
http://michellesuttonwrites.com/2015/11/16/measures-of-success/



Tuesday, November 4, 2014

When school isn't working anymore

Those of you who have been following my parenting journey for a while know that I've spent a lot of time advocating for my kids in their school environments. We've had varying levels of success over the past few years in terms of gaining appropriate supports for the kids within the mainstream schooling environment. 

We've worked with some amazing teachers who have given their all to help the kids. We've also met some teachers who just don't "get it" and don't seem to want to. For the most part though, school was working well enough for the kids. 

Until this year. 

So we made a decision. 

Without going into too much detail, we decided that both MasterL and MissGs social and communication support needs were not being met, and that MasterL in particular was so overwhelmed that his stress was having an affect on his ability to learn in the school environment. MissG was still learning well, and enjoying school, but she was exhausted, and told us she did not want to go to school anymore. 

It's not an easy decision to make, on the one hand, because deciding to homeschool your children requires a substantial commitment of time and resources.... and to be honest, was not what I had anticipated we would be doing right now. But, on the other hand, it was an easy decision because we do not ever want to see our kids so overwhelmed that they cannot cope. I realise some people are not as lucky as us to be in the position to bring the kids home, but for us right now, it works. 

MasterL is enrolled in a Department of Education Distance Education school. MissG is currently away from school on an approved exemption, and is in the process of "unschooling". We will shortly be registering with our state homeschooling authority. 

The changes in both children since leaving the environments that were so stressful for them are easily observed. They are both calmer, happier and more relaxed. Meltdowns, shut downs and periods of overwhelm are occurring significantly less often. They have the opportunity to retreat and self regulate as they need to. They can take time to be creative instead of constantly needing to be on alert. MissG particularly is enjoying setting her own pace and seeking out learning that engages her and is relevant to her interests. 

So over the coming months this blog will undergo another change of focus.... we will be talking about home education and how that works in our family, along with other things that catch my interest or set off my injustice alarm. This parenting gig sure is an interesting journey.